Hi I'm Bob Allerton, 31, living in Yorkshire with my wife and son. I'm a Regional Sales Manager for Hatch Mansfield, a premium wine company and I have advanced Lung Cancer.
Stage 3A Adenocarcinoma Non Small Cell Cancer (non smoking). I have a primary 4cm tumour in my right lung's lower lobe and it has spread to my lymphnodes in my chest hence it's advanced stage status.
I am receiving frontline radical therapies to cure me although I will be in the minority of survivors to past five years. The peak of the disease is 55 to 65 year olds and I have a 0 performance status which means my health is strong enough to throw heavy weapons at!
Video Blog Diary. Please see on your right a video of my finishing treatment. Click on it and it will load up. If your system doesn't allow to view it look at the top of your browser and click on the permission message. It's Youtube supplied.
Where it started. Autumn 2007 I developed a deep cough. The whole of my lungs seemed to be involved. It happened when I was well into my sleep. Click here to read more.
Diagnosis. Dr Newton asked me if I wanted to look at the scan pictures. I just looked at him in slight disbelief thinking "no I don't want to look at bloody pictures". Click here to read more.
Treatment. The treatment consists of Chemo (drugs) and Radio (x-rays) Therapies. Two drugs called Etoposide and Cisplatin as part of my Chemo Therapy. I have 33 sessions of Radio Therapy. Click here to read more.
Autumn 2007 I developed a deep cough. The whole of my lungs seemed to be involved. It happened mainly when I was well into my sleep. The cough was quite persistent and I went to see Dr Paterson and he asked me if I smoked? I don't. I use to in my early 20's as a student but not a heavy smoker. He asked if I had coughed up blodd. I hadn't and he prescribed antibiotics and off I went. Into the antibiotics I did cough up blood and some other quite odd looking stuff and I put it down to the nastiness being ejected. A few weeks later the cough came back and I went back to the doctor and told him I had coughed up a bit of blood.
He referred me to the X - Ray unit in Shipley and it just snow balled from there. My doctor rang me and told me I had a Shadow on my right lung. It was suggested it was an abscess due to the cough. I went for a CT Scan. These two tests were done just before Christmas. My case was referred to the Oncolgy Unit at the Bradford Royal Infirmary (BRI).
So January was the start of more tests. I met Dr Newton and Katie Henderson a Macmillan Nurse. He asked lots of questions to build up a picture of me, including ones about my pets! He did a physical examination of me from head to toe. He asked many questions and I answered them but none of my answers had, seemingly, any worrying elements to them.
I was a perfectly healthy 31 year old male. I did ask him what he thought it was and he was not entirely sure but he had seen the X-ray report and was concerned. He did say to me that there was something serious inside me. I did ask him did he think I had cancer. He could not say I did or not but there were some indications that needed to be explored.
So a Bronchoscopy was ordered and I had blood taken from me as well. I went for the Bronchoscopy pronounced Bronc-osc-opy. It took me a while to get my tongue around it! I couldn't eat on the morning and I went into the BRI and signed in. It took 4 1/2 hours for the procedure. They put a long tube with a camera on the end down my nasal passages and they put it into my lungs. They also took a Biopsy or a little sample from me for further tests with this magical tube device. I was under sedation; I can't remember the drug's name but it was Valium's baby brother.
I was out by 12:30pm and I had a little discomfort for a day or two.
I had a couple of days in London with work. I am a sales rep for my company Hatch Mansfield. We are agents for 12 wine companies all of which are family owned, independent and crucially produce cracking wines. We had an En Primeur tasting, tasting wines before they are released, of one of Burgundy's top houses, Louis Jadot and then the following day the the New Zealand trade show at Lords Cricket Ground where we were showing our Villa Maria, Esk Valley and Vidal wines. So I had plenty of distractions to keep me occupied.
However when I got back home I started to do "research" on t'internet. I started to fret as everything kept coming back to LUNG CANCER. By this time I was convinced that this is what I had. The next day I rang up the MacMillan nurse Katie. I told her I was fretting and I wanted to see the Doctor asap. I.e. today! I.e. now! Not tomorrow as arranged. I went down to the BRI. Back to Homepage
I was taken to the room and Dr Newton was there and asked me if I wanted to look at my scan pictures. He got up to walk to the scan screen. I just looked at him in slight disbelief thinking "no I don't want to look at bloody pictures". I believe he got the gist of my look and sat back down and then I asked him what I had. He told me that I had a Tumour in my right lung. I asked him if that meant I had Lung Cancer and he told me I had a Cancer of the Lung, yes.
Bam! Sledgehammer! Bam! Boy did I shed 3 tears. However I collected my thoughts. Right what do I have to do to beat this then? How do I help others to help me to beat this?
Dr Newton then showed me the scan pictures and showed me the tumour and casually dropped into conversation that I would have to have my right lung taken out to cure me.
You what? Have my lung taken out? My lung, taken out? It was an incredulous moment. Looking back on it it reminds me of Peter Kay's story about his Dad finding out about certain foods. Garlic Bread! Bread with garlic. Cheese Cake! Cheeeeese cake; cake with cheeeese! And you want to take me lung out?!?
Well that was the best A1 chance of cure and Dr Newton went on to explain that we don't use our lungs to full capacity anyway and that my other lung would soon compensate.
What a day that was. I rang my wife and then family, friends and colleagues. I certainly learnt about humanity and the subtle difference to responding and reacting to such news. I must say everybody without exception has been marvelous. Back to Homepage
Here is the email I sent to friends and colleagues - I phoned my family!
Sadly I have been diagnosed with Lung Cancer. I have a tumour in my right lung. The ultimate treatment is surgery to remove the cancer and fortunately I am currently in that category. However on Monday I will be having a PET scan which means that I will be pumped up with a radioactive sugar solution and I have to sit still for two hours (I’ll just have to pretend I am driving to Newcastle!). The sugar solution will attach itself to cancerous cells in my entire body should there be any more outside of what is already known in my lung.
There is in fact a chance that this might well be the case as there are some lymph nodes near my lungs that are suspicious. These are a part of one’s drainage system and the cancer could have spread to my liver, kidneys or bones through this. If this has happened then I have to go for chemotherapy or radiotherapy. This will be of cause palliative treatment and will be more of holding back the inevitable treatment rather than a cure.
However my recent CT scan did not show any signs of cancer being else where so that is positive. If my hopes are true then I will be in surgery in February to have my entire cancerous right lung taken out and the lymph nodes if necessary. I will in effect become One Lung Bob. So celebrating having my lung taken out actually is something I am now looking forward to!! Apparently the body produces a jelly like substance to fill the gap – nice!
Obviously this is very serious but I intend to approach it with humour otherwise I will be letting it beat me before I intend to beat it. I just have to accept that it is an episode in my life that I need to fight and win and bounce back from.
As I am sure you can appreciate this has hit Kirstie and I very hard indeed and we will be having to adapt our home / work life. In regards to work I do intend to carry on as best as I can up to the surgery and then I will be “away from the business” for a few weeks. I shall be sorting out my account base with Mark.
More tests
My further email.
Well! Brilliant news. My Lung Cancer is just in my lungs and hasn’t spread (metastasis). So I am still on for surgery which although still daunting and scary is still my best chance for a longer time at the wicket!
I have had my endoscopy (end-oscopy this one was even worse for me to say!) today. A very long day. In at 10am and not eaten since 8am and procedure well after 4pm. It was very uncomfortable and a bit distressing. They gave me an extra dose of the sedative. One of the doctors did say “well he is quite a tall chap” as a justification!
One thing that did come up on my PET scan on Thursday were two hot spots in my spine. They are not concerned by this as they believe it’s just degenerative as part of my body getting older but they just want to sign it off as such. That’s the MRI on Tuesday.
So on Thursday next week I will be seeing the consultant to discuss all the results and when I am going in for surgery provided the test shows today it is still technically possible for him to do. It’s still looking good though.
So in summary although I am still deep in the woods of uncertainty I am still on my preferred path and jumping over every fallen tree in my way.
Thank you all very much for your kind replies to Sunday’s shocker. They have made me feel loved and secure.
More tests!
Following on email
Last Sunday a good friend gave me a book by Lance Armstrong the American cyclist. He had Testicular and Lung Cancer with cancerous lesions on his brain. It galloped through his body. He went through brain surgery and 4 grueling chemotherapy cycles and it battered him. He did however go on to win 7 Tour de France races.
I am to follow Lance Armstrong as surgery is not a viable option because one of my Lymph Nodes is too deep in my body and they were not convinced that they could be certain to take the cancer completely out and therefore have to further subject me to chemotherapy and radiotherapy anyway with no real benefit.
They are telling me that the Radical treatment that they are planning has the distinct intention of curing me. Full Stop. The planning process will take around three weeks or so. This is not NHS waiting times or beds etc. It takes time to plan specific Chemotherapy treatment doses, areas of Radiotherapy attack etc. So more tests to come.
I will however be seeking to get a second opinion just to ensure that this is the best way. If I am advised to shout louder then I will do so but I have to believe at this stage that I am being cared for as best as possible. I will probably do my "Chem" and "radio", could be a new radio station "Chemo Radio", in Leeds.
I intend to get out in February and go and see my customer base before I start my journey in late February / March. It will be a long three months a bit like when Harmison bowled the first ball in the Ashes in Australia last year. You just thought this is going to be a lonnng series. Hopefully I will white wash my cancer.
I will lose all my hair and my beloved sideburns. As one rather cheeky colleague of mine asked me "if I have chemo and lose my hair when my hair grows back will my bald patch grow back?" I prefer thinning, thank you!
I feel perfectly fine and quite frankly just bring it on.
The treatment consists of two main therapies.
Chemotherapy. Two drugs called Etoposide and Cisplatin. Etoposide is a plant based drug and Cisplatin is platinum based. Cisplatin has been found to be very successful in treating testicular cancer. Here I am on the left after been connected for the first time. You can see the Graseby 500 Modular Infusion Pump.
Here I am when I was first hooked up or canulated.
I am initially put on saline solution to keep my veins open and depending on the drug it varies. Cisplatin takes around 6/12 hours. 2 hours of hydration with magnesium, 2 hours of the Cisplatin and 2 hours of hydration with Potassium. I have a half hour diuretic to make me pass water. This pushes the solutions through and keeps my kidneys active and in control.
Here is a picture of Cisplatin in its protection bag "hanging".
Etoposide in comparison is straight forward as it goes straight in without any need for the above. So Etoposide days are short.
I had steroids to help me against nausea and vomiting. I could suffer from insomnia apparently so that will give me a good reason to listen to faithless then! "There's no relief I am wide awake in the kitchen oh but if only I could get some sleep..." Summut like that anyway. The Cisplatin and Etopisde have two main functions. One is to destroy the cancer cells themselves as they are dividing and two to support the Radiotherapy by sensitising the tumour to the radio waves and enhancing its effects.
The side effects I have experienced have been feeling tired and sleeping lots to feeling skittish by the anti nausea. So really I have not had it bad to be honest and I am grateful for that.
